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An NIH-Funded Rare Diseases Clinical Research Network Consortium
Fri, 01/09/2026 - 13:30
Issue 1
Document
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PHEFREE_Newsletter_January_2026.pdf 609.58 KB
Phenylalanine Families and Researchers Exploring Evidence
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Image of the PHEFREE January 2026 Newsletter.

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The Phenylalanine Families and Researchers Exploring Evidence (PHEFREE) Consortium is part of the Rare Diseases Clinical Research Network (RDCRN), which is funded by the National Institutes of Health (NIH) and led by the National Center for Advancing Translational Sciences (NCATS) through its Division of Rare Diseases Research Innovation (DRDRI). PHEFREE is funded under grant number U54HD100982 as a collaboration between NCATS, the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD), the National Institute of Neurological Disorders and Stroke (NINDS), and the Office of Dietary Supplements (ODS). This website is hosted by the network's Data Management and Coordinating Center at Cincinnati Children’s Hospital Medical Center, which is funded by NCATS and NINDS under grant number TR002818. The content of this website is solely the responsibility of the PHEFREE administrative coordinating center at Oregon Health & Science University and does not necessarily represent the official views of the NIH.

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