Latest News

Join the RDCRN for FDA-NIH Rare Disease Day, February 27-28, 2025

Don’t miss the in-person and virtual celebration of FDA-NIH Rare Disease Day on Thursday, February 27, 2025 and Friday, February 28, 2025, from 10 am to 4 pm EST.

Rare Research Report: October 2024

October 24, 2024

Rare Research Report: September 2024

September 25, 2024

Phenylketonuria Over Time: What We’re Learning from a Natural History Study

May 28, 2024

Rare Research Report: February 2024

February 23, 2024

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16, 2024

Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13, 2024

Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Twenty Years of the Rare Diseases Clinical Research Network: Looking Back, Looking Ahead

January 29, 2024

Keyword co-occurrence visualization map of RDCRN-supported publications 2004–2020.

Join RDCRN at Rare Disease Day at NIH on February 28

February 21, 2023

Rare Disease Day at NIH. February 28, 2023. #RDDNIH.