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Rare Research Report: October 2024

Each month, we share summaries of recent Rare Diseases Clinical Research Network (RDCRN) grant-funded publications. Catch up on the latest RDCRN research below.Jump to:

Rare Research Report: September 2024

September 25, 2024

Phenylketonuria Over Time: What We’re Learning from a Natural History Study

May 28, 2024

Rare Research Report: February 2024

February 23, 2024

National Survey Reveals Impact of COVID-19 on People Living with Rare Diseases and Their Families

February 16, 2024

Flyer advertising the survey appearing on a laptop screen.

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13, 2024

Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Join RDCRN at Rare Disease Day at NIH on February 28

February 21, 2023

Rare Disease Day at NIH. February 28, 2023. #RDDNIH.

Training Program for Clinical Research in Rare Disease Launches New Session

November 9, 2022

Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

Consortium Spotlight: Advancing Discoveries in Phenylalanine Disorders

November 1, 2022