Latest News

Join the RDCRN for Rare Disease Day at NIH on February 27, 2026

Don’t miss the in-person and virtual celebration of Rare Disease Day at NIH on Friday, February 27, 2026, from 9 am to 5 pm EST. Each year, the NIH’s

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Rare Disease Day at NIH. February 27, 2026. #RDDNIH. ncats.nih.gov/rdd

Join the RDCRN for Rare Disease Day at NIH on February 29, 2024

February 13, 2024

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Rare Disease Day at NIH. February 29, 2024. #RDDNIH.

Join RDCRN at Rare Disease Day at NIH on February 28

February 21, 2023

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Rare Disease Day at NIH. February 28, 2023. #RDDNIH.

Training Program for Clinical Research in Rare Disease Launches New Session

November 9, 2022

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Screenshot from a presentation on the Rare Diseases Research R25 Curriculum Grant

Consortium Spotlight: Advancing Discoveries in Phenylalanine Disorders

November 1, 2022

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Early Stage Investigator Spotlight: Stephanie Sacharow Helps Patients with Phenylketonuria Overcome Barriers to Treatment

October 25, 2022

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RDCRN Launches Contact Registry to Connect Patients, Researchers and Advance Rare Disease Research

March 14, 2022

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Stories of Patient Engagement in Rare Diseases Research

June 2, 2020

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Perspectives on Rare Disease Research – An interview with Dr. Tiina Urv, the ORDR Program Director for the RDCRN

January 4, 2018

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